I went to the Mall by myself for the first time in about 18 months last week! Ed needed a replacement jacket from Penney's in the men's department. I was able to find a parking spot right in front and walked all the way to the up escalator without any problems. I did get a little tired and had to stop and drool on the jewelry counter for a moment. I got the jacket and got back down the escalator and was looking forward to walking out into the mall area and sitting on the wooden park benches. To my surprise they had all been changed to lovely, cushy, sink into me couches and chairs-----which I can get in, but not out of!! Luckily I found a Starbucks with hard back kitchen chairs! The chairs enable me to rest so much that I was able to walk down to Macy's, but I found that I had to rest at the makeup counter in one of their high chairs. The ladies there were very attentive and I did manage the strength to pick out a few necessities of life before returning back up the hall via a shoe store! It was great to be able to do that, even if it did exhaust me...oh yes, I was walking, with NO cane!!
I have continued to wean down on my Myositis medicnes and now only take one Imuran a day until my next Rheumy visit. I do believe I am better, but I still hurt. The fatigue is terrible. I am not the way I use to be. But this is so much better than last fall!!
Wednesday, August 15, 2007
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1 comment:
I can identify with your fatigue. While I still work by the time 3:00 comes along all I want to do is take a long nap. Which I do from 6pm to 8:30 pm each night. And of course nothing gets done. Very frustrating.
Roy
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