I Love The Map!

I think I love my map. I am overwhelmed with the response that I have had in a little over 24 hours!! Hoping everyone is as awed as I am.

I recently joined The Myositis Association (http://www.myositis.org) and I was assigned to my KIT group. I cried when I looked at the list, literally bawled like a baby. Only 33 names were on the list and 13 of them lived in Nebraska, so, so far away from me. It really hit me for the first time how rare Myositis is. I contacted TMA and they so kindly let me be on the Southern IL, and rest of Missouri KIT group too. ONLY 11 is in this group, and they don't even have a leader!!! I am thinking about stepping up to be a leader.

If the map gets to be too crowded I will have to make 4 maps, one for each type of the disease. And if those maps get to populated, we will break us down to different regions of the world. I just want us to "see" each other, and know we are not alone.

If anyone wants to link that's fine, please let me know.

I would like for everyone to at least put their first name or nickname and their type of myositis on the map. All you will need to do to add this, is click on your place on the map and your profile will come up and you can edit it. If you have problems just email me. If anyone has a picture that you would like to put on and haven't been able too, you can email me at:

MyositisWorld@gmail.com.

or mail it to me at:

Jackie K
Myositis World
P. O. Box 4111
Waynesville, MO 65583

and I will return it to you.

Future plans for this site include having a page listing doctors that we have used that has a knowledge of our disease that may help those looking for help easier. If you would like share that information now, please feel free to email me. I would like to also add a Remembrance page for those with Myositis that have passed.

Thanks to everyone!! Please subscribe to my blog!!

Double click on the gray bar below the map and it will bring it up bigger. Click on the orange button to join and put yourself on the map. Please put your name or nic;email; city, state; and indicate what kind of Myositis that you have! If you got rejected try and with more information or email me. I'm still learning on how to do this!!