Myositis Blaahs

I attended the Kansas City Mini Convention that Harley Russell, KIT leader for Nebraska, Kansas, and Western Missouri, worked so hard to put on for all of us. It truly was wonderful and I would hope that everyone try their best to attend any support group meeting that you can. You would not believe the feeling of true kinship that comes over you when you enter the room!

I think I used all my energy tokens up to attend the convention as I have not been feeling my best since my return. My daughter came in to spend a few days with me and with a lot of help from her, I have created a page on MySpace.com. The new page also has the Map Of Where We Are In This World, but also contains so much more information.

For my dear friend Fay, my daughter made a countdown calendar to Myositis Day. I have started my promised list of doctors that treat Myositis. And when I finish this Blog entry I hope to start on the Remembrance Page. Please, if anyone has a doctor or someone they want added to the Remembrance Page send me all the details so I can do this.


The URL for Myositis World on MySpace is: http://www.myspace.com/myositisworld I hope you will join myspace and leave me a comment. Make sure you're on the map!!

I had been asked to become the leader for The Myositis Association for Southern Illinois and the rest of Missouri. After attending Harley's meeting there was no way that I could not say yes. I hope to be able to plan a get together for our KIT group in the near future.